Sunday, 24 July 2016

The other side of the boat

The end of spring, and start of summer always makes me feel slightly unsettled. I have hard-wired memories of anxiety over exams, and their results, which pop up every year with the warm weather. Or perhaps memories of moving from a familiar teacher and class, and a predictable weekly schedule, into the unstructured summer holidays and whatever the new academic year will bring. My studying days ended half a lifetime ago, but I still occasionally get those same sensations in the pit of my stomach on a sunny morning.



And now that’s partly because I’m starting to relive it all again through my children. This week Immy left her primary school, where she has been, with the same 1-1 helper by her side, since she was 3 years old. She literally can’t remember a time before she started there. From September everything will be unfamiliar. So far she’s coping with the change with her usual optimism and good humour but there have been some wobbles.




I doubt any of us has avoided feeling a bit unsettled by the pace of political change over the past few weeks. Since May we’ve had a new Government in Wales. Then Brexit, which I think most of us were completely unprepared for. In my place of work almost everything we have been working on for years is affected by our EU membership and is up in the air now with uncertainty about the underpinning of laws and funding. Questions left hanging … shoulders shrugged …



And then the dramatic daily changes in Westminster politics. I get a newspaper delivered and I’ve been amazed by how out of date each day’s edition has been when it drops through the door - with the whirlwind of people coming forward, and then stepping down, as leadership candidates and stabbing each other in the back. Add to that the increasing frequency of terrorist attacks. And the racist and anti-foreigner rhetoric making its way into mainstream discourse here and in the US, political instability in countries not very far away and war and mass migration continuing. I’m sure many people, like me, are feeling unsettled by it all. This blog is about equality, and I can’t shake off the feeling that we are moving rapidly further away from that dream…

I was invited to give a short reflection at our church this evening and as a result I have been pondering, for the past few days, on how Jesus’ followers might have felt after he died. The exact ordering and pace of events leading up to his execution isn’t completely clear from the different gospel records, but it clearly was a dramatic, fast-moving, unexpected and frightening time. Many of Jesus’ followers would have been expecting him to lead them to an uprising against the oppression of the Roman occupation. They would have been terrified by how quickly events changed from his triumphant ride into Jerusalem to the shouts of “crucify him”. They were perhaps feeling horribly guilty about abandoning him at his time of need, whilst also feeling disappointed and let down by him. They would have been left with profound uncertainty about what to do next, in fear for their own lives as a result of being his associates, and in deep shock and mourning too - for the leader they had loved, and served, and followed. Nothing would ever be the same again and they didn't know the end of the story at that point. Everything they had believed and expected for the past few years had come crashing down. 

What they did was to quietly return to their earlier lives, probably feeling exhausted and empty - meeting together in secret, setting out on journeys, trying to get on with their day-to-day activities, heading back to their old professions to make ends meet, and trying to pick up the pieces.

What did they need at that point? Some very dramatic display of resurrection power? Flashing lights, earthquakes and voices from heaven?

What follows is nothing like that. We have a series of simple stories in each of the gospel records describing the disciples in their daily lives encountering Jesus but not recognising him. 

One story is about some of the disciples out on the lake trying to catch fish, unsuccessfully, all night, and in the morning seeing someone walking on the shore, who suggested that they should throw their nets to the other side of the boat. At that point the nets suddenly filled with fish and they recognised the speaker to be Jesus. They met him on the shore - he had already made a fire - and ate a simple breakfast of bread and fish with him.



After the fast-paced passion narratives, we have quiet stories like this breakfast on the lakeside, an encounter on a walk to a nearby town, Mary’s early morning visit to the garden. They evoke an atmosphere of calm and stillness. They take place in the peace of early morning and evening.

Afterwards we have the coming of the Holy Spirit with fire at Pentecost, the dramatic conversion of the apostle Paul on the Damascus Road, the persecution of the Christians and the early days of the Church - again fast-paced, exciting, and full of energy. But the disciples needed this interlude, and Jesus recognised this in the way he approached them.They needed to regain their strength.

So, at times of deep uncertainty or loss, perhaps we are most likely to encounter Jesus in the everyday events of our lives, in the people we meet - the gardener, the fellow traveller, the fisherman by a lake. We can ask God to open our eyes, as the disciples’ eyes were opened, to recognise Jesus and to receive blessing from him. To wait and be renewed before it is time, again, to go out and make a difference.



Perhaps we just need to stop struggling with our nets on one side of the boat, fighting to make sense of things and worrying about how we can sort everything out. Instead we can lift our eyes, turn around, follow our master’s words, and find the abundance of life and blessing on the other side of the boat.  







Monday, 21 March 2016

Comparison is the thief of joy

I remember meeting up with some university friends not long after Immy was diagnosed with cerebral palsy. We were walking outdoors in the sunshine pushing our babies, with some of the older children toddling alongside, all chatting cheerfully. I wasn't feeling particularly despondent, and I wasn't jealous of their less-complex experiences of parenthood. I remember saying that I honestly thought it would have been better if Immy had not been born, and being met with a dismissive laugh from one of them, a doctor as it happens, who suggested that perhaps I was depressed and things would seem better in time. She may have been right in her first observation and she was right in the latter.

Over the years since, several mums of newly-diagnosed children have used those same words in conversation with me. "I wish my child had never been born" probably seem like shocking and terrible words. But these mothers are not (and I was not) saying they do not want to care for, or do not deeply value, their child. It's not necessarily a cry for help, or a sign of depression. It's an assessment made, at that point in time, of the balance of expected joys and sorrows ahead. I never react with a laugh or a dismissive comment.

I'd never stopped to think about the extent to which I had valued myself in relation to other people. Competition isn't a bad thing, it drives us to learn, make progress and excel. It leads to amazing sporting and creative achievements that can enrich all of our lives. It can drive innovations that can be a huge benefit to society, it can improve efficiency and service in a business context. I have been competing with, and comparing myself to, other people my whole life - through school, musical contests and sports, to university and then into work. I was reasonably good at it, and quite happy in that context. I'm now watching, with mixed feelings, as my son starts out on that same track in his school where so much of what the children do is treated as a competition.

And if I'm not competing with other people I'm usually to be found competing with myself - I don't need to join a gym class to set myself a workout that leaves me wobbly-kneed and struggling to breathe. Early parenthood can be a competitive experience too, from the ease with which you conceive, or the natural type of birth you "achieve", or the ease with which you can breastfeed. And then follows the all-important milestones that someone else's baby might be reaching before your own, and so it continues.

So for me, when I started out with a newly-diagnosed beautiful daughter whom I loved so much it physically hurt, this competitive environment was pretty much all I knew. I knew right then that she would never win the competitions, and probably this meant that I would stop winning too. This was scary as I really didn't know any other sort of world. I didn't see how either of us could possibly be happy.

It was only over time that I realised there is another world out there with different types of people in it, who are motivated by caring and nurturing, who are not solely interested in having bigger and better possessions and positions than others. Not everyone is obsessed with paying less tax, amassing more wealth or being promoted. There are loads of people who derive huge pleasure from helping others to achieve, and are happy to stand back and let them take the credit. There are many people that simply want to make beautiful things or play beautiful music for people to enjoy, or who want to spend their lives exploring the world or getting out into nature.

And there are armies of "special needs parents" not at the school gate probably, but who you meet and talk to online and at special groups. We are usually trying to offer each other support and a "shoulders down" place to relax and be brutally honest. We listen and share problems, ideas and solutions, and motivate each other to fight the daily battles for the things our children need. We think of the other children almost as our very own, and cry tears of joy when someone else's child makes a breakthrough or gets through a surgery and comes out safely or stronger.

I have, in my hall by the door, a framed copy of some beautiful calligraphy by a friend of mine whose daughter also has cerebral palsy. It is a quotation attributed to Theodore Roosevelt: "Comparison is the thief of joy". It is in the hallway as a check for me. The problem with competition is that any joy in success is short-lived, as the next contest is not far behind - will I be able to maintain my lead?

*available from WindramDesign on Etsy

It would no longer enter my head to wish my daughter did not exist. I see every single day the joy she brings to people around her. She may not win competitions but she wins hearts. She is happy now, most of the time, and I see no reason why that should ever change, as long as her health and funds allow her to get out and about and be her loving and caring self.

Friday, 18 March 2016

Clutching at straws

When I started this blog I felt optimistic about the title I chose. I felt energised and able to contribute in a small way to improving dignity and life chances not only for my daughter but also for other children with disabilities. After all, a huge amount has been achieved in recent decades by and for people who have an uphill struggle just to get on the starting blocks in the great competition of life. It's only a generation since disabled children were routinely taken from their families and kept in residential institutions, and on another, but related, subject it's not long since we were fighting one another in Europe. We kid ourselves if we think we can never go back to those days.

It really all comes down to the language we use to describe people. When we use words like vulnerable and disabled we are minded to be caring, perhaps because deep down we know that this might one day be us or somebody we love. When words like claimant, welfare spend, scrounger, fraud are used a lot we feel resentful and can distance ourselves, thinking only of the impact on the taxes we pay as a result of this supposed waste of our hard-earned money. On a more severe scale, attrocities such as the holocaust and apartheid (we've looked at the history of these in Lent talks at our church) were supported by large numbers of otherwise caring people because they were able to think of other groups as wicked and dangerous.

Right now the word equality feels like it's gone out of fashion. It's feels a bit passé and slightly embarrassing to be banging on this old drum. We've done with that now and moved on, haven't we?

This week I've been out and about as usual with friends, colleagues and other parents and have done my best to hide the cracks in my smiling mask. I feel like I should re-label my blog "clutching at straws" because there seems to be no cause for optimism in the public discourse.


And yet, the sun is starting to shine, the flower buds are forming, nests are being built once again, and Easter with its profound message of new life and hope in the face of apparent failure is almost upon us. I must look away from public rhetoric and look instead for the beauty in each day, I must steer my thoughts to the abundant generosity and kindness of family, friends, staff and volunteers that support us week by week.



And it is up to me to carry on working to make sure our beautiful girl is as physically strong, emotionally intelligent, academically able and self-confident as she can possibly be to tackle the challenges and set-backs that life will throw at her. I want her to realise her ambitions to offer care and support to others. Indeed I want exactly the same things for my son, who has been lucky enough to be given a head start right now, but who knows what tomorrow will bring?  And actually I want the same for all of the other beautiful and disabled children and young adults, full of potential and patience, that I have the privilege to know.

So please bear with me for the moment until I get the energy and motivation back to continue with the fight.



Friday, 15 January 2016

Fearfully and wonderfully

Sometimes the same words just keep cropping up, and each time they reappear they arrest me more suddenly in my tracks. Just recently it's been the words of Psalm 139, which starts "O Lord, you have searched me and known me". A friend and charismatic member of our community lost her battle with cancer just before Christmas. A group of us met together the night before the funeral and were asked to bring prayers, readings or thoughts to share, and I read this psalm which had also come to my mind a few months earlier when we had been praying for our friend as she went through treatment.

The very next day I heard the psalm again, at the funeral service - which was a powerful and deeply moving celebration of our friend's life and faith, as well as a heartfelt expression of loss.

And then yesterday a Facebook friend posted a beautiful and powerful Vimeo reading of sections of the psalm by adults and children with disabilities. You'll have to click on the link below to see it.

I am fearfully and wonderfully made


The exquisite poetry of this psalm really gets to the essence of what I believe and care about, and my passion for equality. It allows for my doubts and questions, for my weaknesses and confusions. While it doesn't answer my unanswerable questions about tragedy and on-going suffering, it does allow me to ask them within a safe place. I visualise this as the enormous cupped hands of God - the "everlasting arms". And there are other metaphors in the biblical scriptures, such as the place beneath the wings of a mother hen.

The great thing about hearing these words read at a funeral, and by people with disabilities, is that they describe all of us, at all stages of life. It is not our business to categorise people as more or less wonderful depending on their status, wealth, sexuality, ability, race, religion. We are all fearfully and wonderfully made, intimately understood and deeply valuable. It is upsetting that church institutions so often fail to take this on board.

Here are my two wonderfully-made children. They amaze me every day with what they can do, the things they grasp and the pleasure they bring to those around them.

I've reproduced the psalm in full below, including a section towards the end which is far less palatable to our culture - about killing enemies and hating people. Readings of this psalm in church often stop before this section, or skip it and move on to the nice couple of verses at the end. And yet, it is also part of the human condition to wish harm on those that harm us, to dwell on our resentments. This is especially true when we are under threat or are facing emotional, dangerous and difficult times. The writer of this psalm was honest in a way that we are often not honest - it is easy for us to think that this sort of sentiment is the preserve of militant islamists or small-minded racists.

The words of this psalm describe the details of our lives, every cell of our body, every day that we live, every word that we say (kind or vindictive) as being important and known. It's a wake-up for anyone who thinks he, or his club, has a monopoly on truth. It is challenging to anyone who is complacent about her faults. It is a boost to anyone who thinks he is insignificant and unimportant. It is reassuring to anyone who is suffering.

O Lord, you have searched me and known me.
You know when I sit down and when I rise up;
you discern my thoughts from far away.
You search out my path and my lying down,
and are acquainted with all my ways.
Even before a word is on my tongue,
O Lord, you know if completely.
You hem me in, behind and before,
and lay your hand upon me.
Such knowledge is too wonderful for me;
it is so high that I cannot attain it.

Where can I go from your spirit?
Or where can I flee from your presence?
If I ascend to heaven, you are there.
If I take the wings of the morning
and settle at the farthest limits of the sea,
even there your hand shall lead me,
and your right hand shall hold me fast.
If I say, "Surely the darkness shall cover me,
and the light around me become night,"
even the darkness is not dark to you,
the night is as bright as the day,
for darkness is as light to you.

For it was you who formed my inward parts;
you knit me together in my mother's womb.
I praise you, for I am fearfully and wonderfully made.
Wonderful are your works;
that I know very well.

My frame was not hidden from you,
when I was being made in secret,
intricately woven in the depths of the earth.
Your eyes beheld my unformed substance.
In your book were written
all the days that were formed for me,
when none of them as yet existed.
How weighty to me are your thoughts, O God!
How vast is the sum of them!
I try to count them - they are more than the sand;
I come to the end - I am still with you.

O that you would kill the wicked, O God,
and that the bloodthirsty would depart from me - 
those who speak of you maliciously,
and lift themselves up against you for evil!
Do I not hate those who hate you, O Lord?
And do I not loathe those who rise up against you?
I hate them with perfect hatred;
I count them my enemies.
Search me, O God, and know my heart;
test me and know my thoughts.
See if there is any wicked way in me,
and lead me in the way everlasting.











Monday, 28 September 2015

Swimming upstream

I'm the sort of person that wants to DO something about big problems. It's time that all schools were accessible and welcoming to pupils with disabilities. It's time that suitable transport was provided as a matter of course to get children who use wheelchairs to school and on trips. It's time that the NHS started investing in therapy, surgeries and equipment that make a huge difference to the long-term prospects of children with cerebral palsy. Faced with these problems that have a huge impact on a relatively small number of families I'm not prepared to simply grumble and sympathise - I want to solve the problems - all of them and right away!

The trouble is, nobody else is all that bothered. Politicians are interested in campaigns that affect lots of people and improve their chances of getting elected next time around. Managers in the NHS, education and councils are faced with massive budget pressures so need to focus their limited attention and funds on things that will affect lots of people, or people who will make the biggest fuss - or things that are likely to play out in the media.

So while I'm still "dreaming equality", in the light of day I'm actually swimming upstream, unsuccessfully, against a flow that is stronger than me and dragging me downriver. It's wearing me out and I feel like I'm getting nowhere.


I was on a course recently and the trainer was talking about problems that are sometimes described as "wicked issues". They feature a lot in public sector work. No matter how much money we throw at tackling obesity or mental health problems or addiction we're not going to eradicate them. We're not close to abolishing poverty or inequality. While you might be able to tackle them in one direction, something unforeseen might crop up and cause them to get worse again.

Working with Imogen on her training feels like this sometimes. Try as hard as we like she's not going to be an olympic sprinter. She is growing quickly at the moment, and the heavier she gets the harder it is for her weak muscles to move her around - so she needs to get even stronger just to remain as mobile as she is now.  It feels like we're working very hard just to stay still, but she is retaining her mobility and flexibility and we keep working at it. We've no idea what she will achieve eventually, we just keep on working.



We can't give up on these "wicked issues" or the problems will become more severe. We have to keep plugging away at the challenges and thinking of inventive ways to make more of an impact with our limited resources. As it happens I don't think making schools accessible is a wicked issue at all, it's just an expensive and inconvenient one. But achieving disability equality is.

That is because humans have a natural instinct to stick together with people who are most like them, and distrust outsiders. We also have an innate respect for the bigger, smarter, and more beautiful people. We're also hard-wired to look out for ourselves and our immediate families first of all. And yet we also have instincts of curiosity and kindness which compete with these others. Because of this tension, and because of the extra costs involved, we're never going to reach the world where people with disabilities are treated to an unqualified and arms-wide welcome in our schools, our health service and in our society. However, also because of this tension, it's always worth trying.


All I can realistically do is to chip away at the problems I see around, and try not to lose sight of the little evidences of progress around me. Even though there is still no grand plan to make all of Wales's high schools accessible, and no sign that anyone wants to change the law which exempts school buildings from the reasonable adjustments duty, a lot more schools are accessible than when I started my research. In fact the high school we are considering for Imogen would not have been an option three years ago. And while SDR is still not funded routinely on the NHS, some SDR surgeries have been funded - so those families have been spared the challenge of raising thousands. There is still a long way to go, but we've made a start.

I'm reminded of the words of Jesus "the poor you will have with you always". Taken in context this is Jesus welcoming an act of devotion from a worshipper who is being criticised by the onlookers.  It is not an excuse to ignore the needs of poor people, but an acknowledgement that tackling poverty is a continual challenge in which we should all be engaged.

And just when I'm feeling especially discouraged, something happens that reminds me what can be done when a group of people are inspired by a difficult situation to acts of extreme generosity. We saw that in spades when we were fundraising to take Immy to America. We've seen it recently in the generous public response to the plight of refugees fleeing Syria. Most recently I've seen it in the hard work of some local mums and others to open a pop-up cafe just along from Immy's school, inspired by the vision of a friend and community member who is fighting cancer.

'It is not your responsibility to finish the work of perfecting the world, but you are not free to desist from it either." 
(from the Jewish Mishnah)

Thursday, 2 July 2015

The mountain ahead - fearsome barrier or exciting challenge?

We're in the middle of trying to work out where our daughter should go to high school. The whole process of deciding and preparing feels like a mountain looming ahead, and not a sunlit heather-blanketed alpine one. It feels more like a stern rugged Scottish mountain - reminding me of a visit to the Isle of Skye years ago and the shiver that went through me as we approached the Cuillin mountains in shadow up ahead.


Since mainstream primary school has gone well we'd not really questioned that mainstream would work for high school too. But reality has been slowly dawning - the reality that high school kids, high school peer pressure, high school learning challenges, high school logistics are a different proposition altogether. Talking to other parents of academically bright children who use wheelchairs who honestly describe the barriers to friendship that a wheelchair can create, and to parents of children with learning needs who have found that mainstream schools have not been able to meet their child's needs, has really made me stop and think. Our lovely girl has both of these challenges to contend with. Having a kind adult alongside you can help attract friends at primary school, but not many teenagers want to be seen hanging around with an adult. It's all about being cool.

Someone asked me in a meeting what is the most important thing I wanted for Immy as she heads up to high school. The answer came to me immediately and without contest - she needs some really good friends. The friendliness of students and staff has been her number one concern as we've looked at different schools. Her school friends now are very kind but she doesn't quite have the best buddies that I had at the same age. So if that's the case, what school option is most likely to help her make some really close friends? If she's happy she'll learn and achieve. It's been a hard reality to come to terms with, but we feel that Immy needs to learn around children who are more like her if she is to thrive.

So while I'm dreaming of a world where everyone is equally included and valuable, unfortunately that is on the other side of those grey mountains.

I am passionate about inclusive education. A very large proportion of the problems we face around the world are due to mistrust, fear and an inability to empathise with other humans. Clustering round people who are similar to us is a human instinct, but it doesn't serve the cause of world peace well, or even national peace or community peace. Our son recently started at a cathedral school rather like the one I went to, as he won a choral scholarship. This is a great opportunity for him and the familiarity is comforting to me. But it also makes me a bit uneasy and determined to ensure that his horizons are not narrowed. If we can't make our schools inclusive then we make the job of promoting tolerance and understanding much more difficult further down the line. I've said this in another blog post, but being taught in ethnically diverse schools in Leicester has had a life-long impact on me - I don't "see" differences in race and religion as starkly as other people do. Children taught alongside others with disabilities will instinctively show greater understanding and respect for people with disabilities throughout their lives.

But inclusion only works if the resources are available to support it. In busy schools with large classes those who are very different can be very vulnerable. All school buildings should accommodate children who cannot climb stairs - the option should be there, and that is non-negotiable in my view. But it has always been equally clear to me that not every child is best taught in a mainstream classroom. Being equally valuable is not the same as needing equal resources to thrive - in the same way that we use different health resources throughout our lives. Good inclusion practices are expensive and complicated as they centre on each child's individual needs. A really good school values and cares for all of its pupils no matter how strong or weak they are academically, celebrates their successes, teaches all pupils to value and respect those who are different, and embraces as many opportunities as possible to bring everyone together to work alongside one another. This has been our experience with Immy's primary school, with very few exceptions. And it is what we are looking for at secondary level too.

Is it too much to ask? I hope not.

Five days ago I managed to walk, with friends old and new, 26 miles around Malvern and Ledbury, including along the ridgeway, with a total ascent over the day of 4800ft (compared with Ben Nevis at 4300ft). We climbed to the highest peak to start and then headed down and tramped through fields, over stiles and along lanes for about 17 miles before approaching the ridgeway again for the final 7 mile stretch with 10 peaks. At that point most of us were already in some discomfort with blisters and sore muscles, but it looked so beautiful ahead that we were spurred on. And we weren't disappointed. I took the picture below as we approached the iron age fort on one of the final summits.

A "walk" along the Cuillin Ridge on Skye on the other hand involves tackling 11 munros and a total 13,500ft ascent. Given that today was the first in which I could get downstairs comfortably without holding on I think I'll leave that one to the experts!


British Camp - Iron age fort on the ridgeway near Malvern

The thing about hill walking is that you can only take one step at a time. You can't see over the next little summit, or round the corner. But then you come across a beautiful butterfly or an amazing view that lifts you, and fortunately we usually walk in the company of friends to encourage us through the tricky bits and give us a hand down a rocky jump.

I'm so grateful for social media - my Facebook friend list is full of inspiring, and sometimes despairing, parents of disabled children who are tackling the same mountains as we are, one step at a time.

Best foot forward then!



Sunday, 26 April 2015

To the moon and back

We take it for granted that children with disabilities should be cared for within their own families wherever possible with state support, but we forget how recently this was not the norm. I was born in the early 1970s and at that time children who had Down's syndrome and other disabilities were still regularly taken into institutions as soon as they were diagnosed. Institutions were able to provide efficient care, meeting basic needs and sharing specialist resource, but at worst they masked systematic abuse, and a serious inability to meet the emotional needs of vulnerable children, as the work of Maureen Oswin exposed in the 1960s and 1970s. Her publications were instrumental in changing attitudes, and increasingly children with disabilities remained in the care of their parents.  



The fact is that no institution and very few temporary carers can compete with the fearsome love and dedication that parents of children with disabilities bring to bear in fighting for their child's best interests. I could easily fill a book with examples of parents doing incredible things to give their disabled children the best possible chance of achieving their potential and being confident and happy with themselves. In the face of daily exhaustion, constant criticism, low expectations and demoralising delays and rationing, parents fight on to get what they know their children need. We love them to the moon and back! And as for the parents who have been told "your child will never achieve a, b and c" who go on to prove the professionals wrong - I hear new examples of this every week.


The Chronically Sick and Disabled Persons Act in 1970 made the provision of welfare to disabled people of all ages a legal right, and until recently you would rarely hear any public questioning of the finances and services provided for people with disabilities. But times are changing. A report by the UK charity Contact a Family, of which I am a trustee, recently reported that 70% of parents of disabled children say they feel that the stigma of claiming benefits for their children has increased in the last two years. And more than 10% say that they have had verbal insults for claiming benefits from friends or family members!

It is far more expensive to bring up a child with a significant disability. Specialist equipment, like tricycles or car seats, costs around 10 times the "mainstream" alternative and is very often not state-funded. A higher proportion of relationships break up when disabled children are involved, so these higher costs are borne by a single parent. Holding down a job is difficult, with frequent medical appointments and challenges finding other people to care for your child outside of school hours and in the holidays. Most working mothers I know who have disabled children have either given up work, have not progressed in their careers or have started small businesses. Families are, everywhere, struggling to cope.

I have not seen any figures suggesting that more disabled children are now being given up by their families into state care again, but there are signs that we are moving away from inclusive education.  I do not believe for a moment that all children are best taught in mainstream classrooms, but my own quick examination of Wales's education data suggests that the trend, through the previous couple of generations, to educate more children with disabilities in mainstream schools seems to be going into reverse now. Special schools are growing and, in South Wales at least, are being moved onto sites next to one another for efficiency reasons - and fewer children are being taught in special units attached to mainstream schools. These figures could be partly a result of more children surviving with more complex needs, but I don't think that is the whole story.

The title of this blog is Dreaming Equality, but with an election coming up has anyone else noticed the topic of equality being given any airtime at all - whether that be disability or gender, race or religious equality etc? I'm often met with slightly embarrassed looks these days when I talk about disability equality for children in Wales. It's almost like these are old-fashioned ideas. Things seem to have changed quite recently.  And they need to change back.